Background:
Physical activity is important in assisting recovery and improving cardiovascular health after a stroke. Significantly, stroke survivors typically have low levels of physical activity. Carers may be well positioned to support stroke survivors in overcoming barriers to physical activity and exercise.
Methods:
A World Café methodology was undertaken as a one off, face-to-face, event, with stroke survivors, health professionals and stroke support organisation employees, generating ideas to guide the development of a carer-supported home based exercise program for stroke survivors. Three rounds of questions explored exercise and physical activity after stroke, strategies for ongoing participation and the education and training needs of carers. Data were recorded via multiple formats; an overhead PowerPoint display, table notes and graphically by a visual artist.
Results:
A key feature throughout all question rounds was the importance of program individualisation for both the activity program and carer training. A focus on walking and other functional activities was described. Key to carer education and training was recommendations to include information on the broader impacts of stroke and the importance and specifics of exercise. Providing an enjoyable program and opportunities for emotional support, to both stroke survivors and carers, was recommended. Targeting a program to the transition phase back to living at home would be optimal.
Conclusion:
Individualisation, emotional support and enjoyability are valued aspects to include in program development. Elements of the carer training and activity program are described and may assist with transition to a more active life in the community after stroke.