Background and Aims: Data on commonly reported unmet needs post-stroke are crucial to inform interventions and care provision. We aimed to synthesise contemporary data on the prevalence of unmet needs post-stroke, and associated factors, among survivors in the community.
Methods: We searched Medline, EMBASE, and CINAHL for articles with prevalence estimates on unmet needs post-stroke. We included only articles including data from 2013 onwards from survivors living in the community or support persons. Random effects model was used to meta-analyse prevalence, and associated factors were summarised.
Results: Of 1,073 articles screened, 13 were eligible for inclusion (n=5,754 participants), including 8/13 with data on associated factors, and one from a low-to-middle-income country. All studies were of satisfactory quality (adapted Joanna Briggs Institute score ≥3/5). Overall, 59 unique unmet needs were identified across six domains: body function (n=13), cognition/mental health (n=7), social/community integration (n=6), activity/participation (n=13), service/information (n=8), recovery (n=12). The pooled prevalence of reporting ≥1 unmet need was 65%. Unmet needs with the greatest pooled prevalence estimates were education/information on stroke (72%), diet (61%), fatigue (49%), concentration (46%), adaptation and aids outside (41%), and falls (40%). Thirty-three associated factors were identified, relating to social determinants of health (most commonly age, sex), stroke type/severity, post-stroke care (most commonly length of hospital stay, post-stroke services), multimorbidity, and health and well-being.
Conclusions: We provide contemporary data on unmet needs post-stroke. While some factors were consistently associated with unmet needs across studies, associations for several other factors were inconclusive, highlighting the need for further investigation.